This year, February 28th will mark the eighteenth Rare Disease Day. Since 2008, Rare Disease Day has been observed every year on 28 February (or 29 February in a leap year, the rarest day). It is a globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Around the world, events are organized by patients, clinicians and any person interested in raising awareness for rare diseases.
In ÀÖ²¥´«Ã½, the RECORDER group uses health data science and large-scale data to improve the lives of people with rare autoimmune rheumatic diseases and other rare diseases. The RECORDER team are participating in # which coincides with ÀÖ²¥´«Ã½'s Light Night festival.
Contribute and follow what’s happening on social media with and #RAREDISEASEDAY. Or interested to collaborate? Visit our website or email RECORDER@nottingham.ac.uk.
Notes
Figures are from and (Department of Health and Social Care, 2021)
Posted on Thursday 20th February 2025