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Reproducible analytical pipeline (RAP) for mortality analyses of rare diseases using data from EUROSTAT

Aims

  • To describe temporal and geographic trends in mortality of rare diseases across Europe
  • To identify differences by age, sex and country 

Publications

Gumber L, Omidvar R, Gonnelli F et al. Temporal trends in mortality due to haemophagocytic lymphohistiocytosis (HLH) across 29 European countries over a 10-year period, Lancet Rheumatology

Biddle K, Taylor A, Trimble TJ, Grainge MJ, Lanyon P, Galloway J, Pearce FA. Trends in mortality due to GPA/MPA across Europe: insights from a decade of death registrations. Rheumatology (Oxford). doi:

 

Start date: July 2023
Contact: Adam Taylor
Funder: MRC